sleep Archives • Page 2 of 3 • Fibromyalgia Athlete

November 30, 2015

Review: Fitbit Flex

I don’t worry about my activity level—it’s always high when I’m well enough to exercise—but I’m a sucker for data. I have an awesome, old Garmin Forerunner for tracking runs, and my iPod Nano can track runs with its built-in Nike+ app, but I wanted something more basic that I could wear all the time. I’m interested in knowing how active I am throughout the day, not just during exercise. My mom has a Fitbit Flex and likes it a lot, so when I saw a decent sale I got one for myself. I chose bright pink because it was $10 cheaper than the other colors.

When my Fitbit Flex box arrived, I found a small black tracker, two sizes of pink bands, a tiny wireless dongle, and a small USB charger inside the package. I have a prepaid iPhone 4 and can’t use much data, so I opted out of the Fitbit phone app and instead chose Fitbit’s MacBook-compatible program. The interface is user-friendly and easily customizable, and I checked it out while my new Fitbit charged.

From what I can tell, the Fitbit Flex works like a basic pedometer by detecting movement and translating that movement into an estimate of how many steps the wearer takes throughout the day. You can calculate your stride length and input your numbers for better accuracy, and add which arm you wear the tracker on to avoid dominant-hand movements counting as steps. From Fitbit’s website: “Changing this setting to “Dominant” will decrease the sensitivity of step counting and should reduce any over counting of steps when your body is not moving. The “Non Dominant” setting will increase the sensitivity of step counting, and we recommend this setting if your Flex is not counting enough steps.”

The sleep-tracking feature on the Flex intrigued me, since chronic pain often leaves me sleepless. My back pain has majorly decreased lately, which means I’m sleeping a lot more, but I still don’t sleep as well as I should. I hoped the Flex would help me analyze how often I stir around and disturb my sleep, but it didn’t work out for me. The first night that I put my tracker into sleep mode, I obsessed so much on having something around my wrist that I couldn’t go to sleep. Even without neuroses (yes, I can be a bit obsessive to say the least), the sleep tracking feature isn’t particularly sophisticated and can be prone to flaws, but I still wish it would’ve worked for me. It’s possible to lie still while wide awake and have the tracker register that you’re sleeping soundly, but when I’m in pain I don’t lie still, so that wouldn’t have been a problem for me.

If any of the Fitbit features are something I don’t want to use, I can easily remove them from my dashboard so I don’t have to look at them daily. I took off the sleep box to avoid reminders that I didn’t track my sleep. Another one I removed was the weight information and food tracking. I don’t have any desire to track my calories. The water-tracking feature can be helpful, though, especially since I’m prone to dehydration. It’s a serious concern for athletes in Florida.

My major gripe about the Flex so far is its sensitivity. It’s supposed to be compatible with an active lifestyle, but I’ve found that a lot of my daily movements put it into sleep mode. Sleep mode activates when you tap rapidly on the tracker for a few seconds. For me, it also activates when I mow the grass (vibration from the mower, I guess), pat the dog’s belly, or ride over bumpy terrain on my bicycle. I’m an old drummer and still have a habit of drumming my hands on the counter or my thighs, and that, too, sends the Flex into sleep mode. Not cool.

I saw a Black Friday sale that would’ve made it a lot cheaper than what I paid (even though I got mine on sale), and of course that was aggravating. I have concerns about the durability of the bands, and the expense of name-brand replacement bands is ridiculous. The bright pink has already gotten a bit dull after a couple of weeks, so I ordered a few off-brand (read: way cheaper) replacement bands, but I don’t appreciate having to do that. Can you imagine if we had to buy new watchbands every month? Fitbit needs to work on durability for sure.

I’ve worn the Flex while running several times, and it’s been fine. The tracker and band are lightweight and comfortable. Sweat sometimes collects inside the band, so I always take out the tracker after a run and make sure it’s dry. The Flex is water-resistant but not waterproof, which is annoying, but so far I haven’t had problems with sweat or shower water ruining it.

Despite some drawbacks, I like the Flex. It’s a great reminder if I’m working on the computer to get up and move around instead of melting into my chair. My mom and I are “friends” on Fitbit’s online program, and we can see each other’s step counts and cheer each other on if so inclined. I upped my goal to 15,000 steps per day from the stock 10,000, and I’ve found it pretty easy to reach 15,000, but the tracking software allows me to see my most active hours of the day rather than just displaying my number of steps. Which reminds me—it’s time to conclude this review and do my lower back a favor and go for a walk.

Nutshell Review

Pros: lightweight; choice of colors; easy and user-friendly online tracking program; comes with two sizes of bands; creates a good reminder to get up and move around throughout the day.

Cons: too sensitive—can go into sleep mode accidentally; bands aren’t durable and color doesn’t stay fresh; replacement bands are expensive; can be hard to snap onto wrist.

July 13, 2015July 13, 2015

Life with Chronic Pain

Sleep is a sticking point for a body in chronic pain. It’s what I crave the most—to just lie down and close my eyes and not wake up for hours—but it’s often a craving left unsatisfied. Most mornings begin one of three ways.

I wake up as the dogs rattle around in the kitchen, sniffing for errant kibble under their blankets and bowls. I take stock of the situation—is it really morning? How much sleep was I able to get? What muscles are spasming? Am I able to turn my head or is it stuck in one direction or the other? I’m stiff, sore, and need to get out of bed quickly before I can’t get up at all, but I’m thankful to have gotten a few hours of sleep.

Or, I wake up at 3 a.m., my hips throbbing, an electric-like pain shooting across my pelvis. My neck is stiff, my leg muscles are rigid, and nerves light up throughout my body. I stand up in the dark because I can’t stand the pressure on my body as I lie on the bed.

And there are the mornings that are merely extensions of the previous night. Those are the hardest, the ones where no matter how many times I change positions or alternate between the bed and a camping mattress on the floor, I can’t get comfortable. I’m exhausted but in too much pain to sleep. Midnight, two a.m., sunrise, all come and go. Eventually I get up, defeated by my own body, and try to start another day.

I used to take sleep for granted. In college, I’d fall asleep on a cheap blow-up mattress and wake up feeling like a million bucks. Before chronic pain, if I said I didn’t get enough sleep, I meant that I’d had four or five hours of rest. Now, those hours are days. My record is ninety-six hours without sleep, and by the time I finally took enough muscle relaxers to knock myself out, I was shaky and cold and thought I might die.

I hate prescription medication. I use vitamin B supplements, sublingual melatonin, and organic tea to try to sleep. But occasionally, on nights when nothing else works, I reach for a bottle of pills. It’s one of the worst kind of defeats—to admit that my body is attacking itself, trying to stay awake through the hours meant for sleep.

I try to look at chronic pain as a test, a puzzle that must be worked with through trial and error until my body and I come up with a livable solution. I exercise daily, often spending an hour working on my core muscles to help alleviate the pressure on my spine. I eat a restricted diet, avoiding sugar and corn and gluten and a lot of other things that seem to inflame my body. I have a pretty good survival system, but chronic pain is a fulltime job. Every bite of food, every push of a heavy door, every reach overhead to pull on a fan—every single thing has to be carefully planned, because a wrong move can leave me debilitated for days or weeks.

Sometimes, when I’m able to sleep, I drift off to lucid dreams in which I’m running half marathons again, or scoring goals on the soccer field, or finishing my first triathlon. They’re beautiful dreams, but because they’re lucid, I know there’s a certain sense of falsehood in them. Willpower and hope keep me fighting through the sleepless nights. I may not be able to run again yet, but I want to, and desire is a powerful thing. I get mad sometimes—a resentful, ugly mad—but I try to channel that anger into healing. Chronic pain owns the mind as much as it owns the body, and staying hopeful that one day I’ll be okay is my way of telling it to kiss my pain-free ass.

April 10, 2015April 10, 2015

Supplements and Sleep

calm thoughts supplement — image from source naturals’ website

Has anybody tried a supplement called Calm Thoughts? I’ve been using it lately and have had a week of fantastic results. I’ve been sleeping almost normally for the first time in years, and my pain is way down.

I’m off all prescriptions, and so thankful to be out of the vicious cycle of one pill begetting another. Chronic pain and illness (including fibromyalgia) often necessitates prescriptions, but I hate taking them. I’m much happier if I can safely and effectively use homeopathic supplements.

Now that I’m sleeping, I wonder if the massive improvement in my symptoms is due to the supplements themselves or the repair my body is able to do while it sleeps. We all know how important sleep is to healing, so it stands to reason for me that my return to restful sleeping might be the best chronic pain medicine available.

January 18, 2015July 8, 2015

Reclaiming Life at What Price?

running with fibromyalgia — It was raining, but it was a great day to run.

I’m curious what you do when you want to do something so bad but you know it’s potentially disastrous for your health. Bottom line—with every fiber of my being I want to return to running, but I’m scared to death of the post-run nighttime pain that made me howl like a wounded animal the last time I ran.

When I see people running, I feel a mixture of hope and bitterness and excitement and disappointment and jealousy. I’m happy for them that they get to experience the joy and challenge of running, but I desperately want to return to one of the last things I had to give up. Soccer is unrealistic. Tennis is probably unrealistic, too. Same with rollerblading. But running was my holdout, the final thing I kept for myself for peace, clarity, adventure, and release.

My internal debate gets more heated every day. I’m walking several miles (and sometimes as many as 5 hours) daily, so it seems like running a few minutes in the midst of all that walking wouldn’t be a big deal. But every time I almost embrace freedom and take off, I think about the way my hips and back felt the night after the last time I ran, and I keep walking instead.

Is there anything you’ve given up for fibromyalgia that you’ve reclaimed? If so, did it come with a price, and is the price worth it?

January 6, 2015July 8, 2015

Top Five Ways to Stay Healthy

5. Wash your hands frequently and thoroughly. This seems like a no-brainer, but I stayed well through the entire fall season when a lot of people were sick. I think a lot of my wellness had to do with washing my hands with warm water and soap more often than I wanted to—especially after grocery shopping, checking the mail, and at work.

4. Sleep. Having fibromyalgia or any kind of chronic pain can make sleep very difficult, but do what you can to get as many hours as possible. I’ve taken to sleeping on my camping mattress on the floor with my legs on three pillows. I look ridiculous, but my back hurts less and I’m able to rest.

3. Try herbal supplements and teas. I like spirulina and Counter Attack. They taste bad and require a quick swallow and lots of water, but they make me feel energized. I also like Throat Coat tea. Of course, make sure your healthcare provider clears you to take supplements before you try them.

2. Exercise outdoors. Even if I only go for a short walk in the woods, I immediately feel better physically and mentally. The clean air and peacefulness helps me connect to the planet, and the movement helps with my stiff joints. I feel sick in general if I don’t get time outdoors.

1. Avoid processed foods—especially sugar. There are lots of studies that show the negative effects of processed sugar. Yes, it tastes good, but feeling like crap and/or getting very ill isn’t worth the momentary blissful taste. Fresh blueberries will taste super sweet after you get used to abstaining from processed sugar, so go for fruit if you need something sugary. As a side note, I ate some candy and cookies as the new year approached, and caught a very bad cold within a few days. Coincidence? Maybe, but I’d been healthy for 14 months before, and those were 14 processed-sugar-free months.

November 17, 2014July 8, 2015

Piroxicam and Tizanidine

After ditching Lyrica, I resolved to do whatever I could to stay off prescription drugs. Very rarely, I took one Skelaxin for muscle spasms. The side effects weren’t worth it most of the time, but sometimes I would be so bad off that I had to take one. As the one-year anniversary of my back and hip issues neared, I couldn’t take the daily pain and stiffness anymore. I made an appointment with the doctor who’s worked on my neck in the past. He’s smart, isn’t afraid of the latest medical technology, and perhaps most importantly, he actually spends time with his patients and listens like a human rather than a hurried robot. Unfortunately, those attributes make it very hard to get an appointment, and I waited two months despite being an established patient.

When I did finally see him, he examined my back and hip and told me a few things I already know, like I have tight muscles and joint laxity. He decided to order a lumbar MRI, which wasn’t a surprise. He also talked me into filling a couple of prescriptions because he was very worried about my high pain levels and lack of sleep. I left his office with two scripts I’d never heard of before—Piroxicam and Tizanidine.

I thought I might not fill the drugs, but pain wore me down and I headed to the pharmacy. I figured I could try them once or twice and get off them quickly if they sucked. Piroxicam is an NSAID pain reliever and Tizanidine is a short-acting muscle relaxer. I was given instructions to take the Piroxicam once per day and the Tizanidine up to three times per day. I took one of each the first night, and was asleep within an hour.

Going to sleep quickly is a big deal with a body wracked by chronic pain. Hell, going to sleep at all is monumental. When I woke up the next morning, I didn’t feel hung over at all—I just felt better. I felt genuinely rested, unlike the crappy, forced sleep that comes from some drugs.

For several days, I took one Piroxicam in the evening and one Tizanidine before bed, and I felt great. I hiked 21 miles one weekend, and began to feel hopeful about a mostly pain-free back, neck, and hip. As always, I follow a healthy diet and use my hot tub as much as three times per day. The good food, warm water, and new prescriptions gave me a feeling of freedom from pain, and it was priceless.

That feeling was also short-lived. After almost a week, I noticed my back pain was getting more intense again, and my neck felt badly out of alignment. This seems to be the curse with my fibromyalgia—something new helps for a little while, but before long, I’m back to hurting.

I took a break from my nightly muscle relaxer routine and didn’t notice much of a change. However, I’m now on day two of no Piroxicam, and I feel like crap. I haven’t decided yet if I’m going to start taking it again, but I’m leaning toward yes. I’m scheduled for the MRI this afternoon, and if I get stiff having to lie still for it, I’ll probably come home and pop a Piroxicam.

Have y’all tried either one of these medications? If so, what’s been your experience? I’d love to hear from you.

April 24, 2014July 8, 2015

Whole30, Day 3

Current fibromyalgia symptoms: Right buttock/ low back/ hip pain still hanging on. Stiff neck but better than two days ago. Major brain fog—possibly related to switching to Whole30 from vegan. Tired but not exhausted, and worried I won’t sleep again.

Today’s exercise: 20 minute run; 30 minute walk; 30 minute light weightlifting and stretching routine.

Breakfast: 1 egg; 1 apple

Lunch: Ground beef cooked with onion and tomato; sautéed broccoli; and raw carrots

Snack: Smoothie made with canned coconut milk, ½ frozen banana, ¼ cup frozen blueberries, 2 tablespoon almond butter, and ½ scoop Garden of Life Perfect Food. Between lunch and dinner, I had four small sheets of Sea Snax seaweed.

Dinner: Ground beef sautéed with onion, green pepper, and jalapeno pepper served atop 6 big leaves of buttercrunch lettuce; Wholly Guacamole; and ½ roasted sweet potato.

General Feelings So Far: This is the most radical diet change I’ve ever made so quickly, and I definitely feel weird—like I’m living on a level somewhat removed from reality. Perhaps this is the “carb flu” spoken of in It Starts with Food.

I’m still not morally on board with eating animals, and that’s going to always bother me no matter how this diet change goes. I think it’s definitely a good idea to look for health benefits by cutting out wheat, corn, and processed food. But I’m still unsure about the rest of it.

I didn’t sleep last night and got out of bed at 3:45 a.m. to eat several spoonsful of almond butter. I found out the hard way that it’s easy to accidentally consume too few calories on Whole30. I remedied that today with more sweet potato and avocado, plus a coconut milkshake. I definitely don’t feel like I’ll be hoofing it to the kitchen in the middle of the night tonight. I’m not one to wish life away, but I’m definitely eager to see how I feel in a few days. The second week is supposed to be when more of the positive feelings (and less carb flu) happens.

April 22, 2014July 8, 2015

Whole30, Day 1

Day one of Whole30 hasn’t been too bad. I’ll break it down for you.

Current fibromyalgia symptoms: both hips ache, and muscles in right buttock are in spasm just enough to provoke pain down my leg, presumably from the sciatic nerve. Left-sided neck and upper trapezius feel sore and tight. A bit of fatigue, possibly from not sleeping well due to hip pain last night.

Today’s exercise: two-hour walk around the neighborhood. Nothing major, just strolling and enjoying the weather.

Breakfast: 2 organic chicken eggs scrambled with sautéed kale and onions, plus 3 strawberries. I had a slight stomach ache after breakfast, which never happened when I was vegan, but it wasn’t too bad.

Lunch: 90% lean beef (organic, pastured) cooked in organic coconut oil with diced onions and a tomato, served atop a heaping bed of romaine lettuce and topped with a little plain yellow mustard. Sort of like a hamburger without the bun, ketchup, or mayonnaise. I also ate 8 baby carrots.

Snack: After walking for a couple of hours, I had 4 big spoonsful of organic almond butter (fresh from the co-op churn—no sugar or salt added) and 4 organic strawberries.

Dinner: Wild-caught salmon cooked in a little olive oil with oven-roasted sweet potatoes and Brussels sprouts. YUM. I only wish I’d remembered to buy fresh dill for the salmon.

General Feelings So Far: It sounds crazy to already have a lot of thoughts about Whole30 since it’s only the first day, but my mind is very much on my eating habits. First, I’m still morally uneasy about consuming meat, and only take some comfort in knowing my food was raised and slaughtered by farmers using as humane practices as possible. The grease of the ground beef, even though it was 90% lean, was a little gross, although the beef tasted great. I’m just not used to grease since I’ve been vegan for months. I’m very glad that Whole30 doesn’t allow dairy. Cheese and milk would be too much to stomach at this point, and I truly believe that some of my fibromyalgia symptoms improved once I gave up dairy and became vegan.

The cravings are insane. I’m not much of a sugar-eater, or at least not in the cupcakes-brownies-cookies sense, but obviously my body is used to refined carbohydrates. Throughout today, I’ve found myself craving banana nut bread, refried pinto beans, sweet cornbread, and pecan waffles. Wow. The “sugar dragon” mentioned in the Whole30 book, It Starts with Food, is no joke.

I also found that I didn’t buy enough food at the grocery store. I’ll have to stop at the co-op again tomorrow for more fresh veggies and meat. One more observation—it’s not easy dealing with special occasions and staying true to Whole30. There’s always a friend’s birthday or a holiday on the horizon, and with those special days come pizza, cake, and alcohol. I’m pretty sure my first test is coming within a week, but since I’m hoping to slay the God-forsaken beast that is fibromyalgia, I’ll stick to my guns and eat my own food, no matter what the occasion. But I might still dream about buttermilk biscuits.

April 20, 2014April 22, 2014

Relieve Fibro Symtoms Whole30?

I’ve decided to try the Whole30 diet for a month starting tomorrow. I’ve been vegan for several months now and have noticed improvement in my fibromyalgia symptoms, but there’s still too much pain in my body. I’m going to keep a fairly detailed log of the Whole30 experience in case any of you are interested in trying it, and also so I can chronicle the ups and downs of transitioning to zero processed foods.

For anybody who hasn’t read about Whole30, check out their website. The basic premise is to eat no sugar or sugar substitutes, eat no dairy or grains or legumes, and drink no alcohol. Essentially, balance your plate with a big pile of vegetables and a palm-sized protein source— in other words, eat real food, not crap.

Since I already don’t consume dairy as a vegan, that part won’t be hard. I’m also a minimal drinker, so the lack of alcohol isn’t a big deal (although I’ll miss my occasional beer). I already cook with olive oil and coconut oil and enjoy fresh vegetables, so I’m on board there. What will be challenging for me is the meat consumption and the lack of potato chips.

I love potato chips. They’re a serious vice. I get the slightly healthier kind—organic and seasoned with only salt and pepper—but I can’t have a single chip on Whole30. That one’s going to be rough.

I’m sure the meat and eggs will taste good, but I have major ethical and moral hang-ups about consuming animals. There’s a local farm that uses the most humane slaughtering methods possible, and I vow to only buy from them. But still. Killing is killing, and I’m struggling with this one. I’m certain I’ll predominantly be eating wild-caught fish rather than beef, pork, and chicken. None of it warms my heart, but at least the salmon got to swim freely and enjoy life before landing on my plate.

Tomorrow’s the big day. I’m very much hoping for a major reduction in inflammation, and thereby a major reduction in muscle spasms and pain. My right hip has been keeping me up (I set a new personal sleepless record—84 hours awake), so something’s got to give.

Breakfast will likely be a scramble of eggs, kale, and onions cooked in olive oil. Lunch and dinner, I’m not sure. I shopped for all kinds of fresh organic ingredients at the co-op today, and it was weird to be buying meat again after being vegan. But with the hope that Whole30 can knock down fibromyalgia, I’m going all-out with it tomorrow. You’re not supposed to weigh yourself during Whole30, but I’m going to because I’m already on the low end of healthy and need to make sure I don’t get skeletal. I’ll let you know how it goes.

March 13, 2014July 8, 2015

Physical Therapist and Chiropractor to the Rescue

I sometimes undervalue the effectiveness of physical therapy and chiropractic work. In my latest bout with back and hip pain, I was reminded of something that I ironically tell my patients and friends regularly: non-invasive treatment can be the best kind of medicine.

After my sacroiliac joint pain progressed into gluteal spasms and a rotated pelvis, sitting became impossible. I stood for as many hours of the day as I could, and laid prone with a pillow under my hips for the remaining hours. I couldn’t sleep because of the pain, and I finally had a “duh” moment. I work at a spinal rehab clinic. My bosses are a top-shelf physical therapist and an awesome chiropractor. Time to ask for help from the best.

I’m sometimes too passive in asking for help because fibromyalgia makes me feel like I need help way too often. But when I couldn’t sit or sleep, it was time for intervention. My boss /physical therapist put me through a thorough evaluation, and I started treatment two days later. It can be a little strange to be a patient in my own clinic, but the tradeoff is knowing that I’m getting great treatment. The decrease in my pain, progress in flexibility and mobility, and renewed ability to sit (and sleep) are testaments to how well chiropractic care and physical therapy can work together to heal even chronic pain suffers.

I’ve been to two PT/chiro sessions this week, and am currently able to sit pain-free on the floor. I had no idea how important sitting is until I couldn’t do it for a few days. I ran 6 ½ miles on Monday and was able to concentrate on the blue sky over the beach rather than the pain in my back and hip. Tuesday, I could do light weightlifting at the gym and actually sit down for dinner rather than standing through meals. Today, I ran 5 miles, walked the dogs, and was able to sit for 15 minutes in the hot tub without feeling like my sacrum was about to stab through my skin.

Forgive the pun, but fibromyalgia is a pain in the ass. I think the best way to sum up fibromyalgia to people who don’t understand it is to say this: it’s not just a cluster of random and sometimes unexplained painful symptoms (although there are definitely those). Normal injuries happen, but the aftermath is abnormal. The consequences from a healthy runner falling on a trail run are usually some bruises and scrapes. The consequences from a fibromyalgia-suffering runner falling on a trail turn into weeks of muscle spasms, misaligned bones, and exhaustion. It’s like fibromyalgia makes a worst-case scenario out of every situation.

The longer I live and the longer I fight chronic health problems, the less faith I have in pills and surgery. While those things are good options for some people, I prefer to stay as minimally invasive and drug-free as possible. Luckily, I have access to extremely competent and like-minded health practitioners who can stretch, massage, and manipulate my body into a good enough place to keep me out of the pill bottles and out from under the knife. I’ll never again underestimate the power of a physical therapist and a chiropractor—or the convenience and comfort of sitting.