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Caffeine Provokes Fibromyalgia Symptoms

Caffeine, as I’ve suspected for several months, makes my fibromyalgia symptoms much worse. While that revelation kind of sucks, it’s also always nice when something can be easily controlled, like caffeine intake.

I love coffee. As a vegan, I’ve been enjoying soymilk, coconut milk, and almond milk as creamers. I never add sugar or sugar substitutes to my coffee, which makes me even more certain that it’s the caffeine that, even in very small amounts, massively increases my anxiety and provokes muscle spasms.

I kicked caffeine out of my life for a couple of months, then started drinking less than one cup of coffee per morning last week. Within two days, my neck pain was worse and I felt less hopeful. My running improved. Even hills felt like less effort. But the increasing pain and hopelessness were absolutely not worth it. By day five of drinking less than a cup a day, I was in bad shape.

Going cold turkey wasn’t too hard since I’d only been drinking coffee for six days. It wasn’t great fun, but it wasn’t the worst thing to quit. And, on Sunday, I not only ran eight miles at a decent pace, but I also took my paddle board on a two mile journey.

Fibromyalgia is picky. It demands a lot of sacrifice. But if forgoing caffeine allows me to live a more normal life, then I’ll never touch another cup of coffee again.

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Merry Christmas

Christmas is a time of reflection for me. I have to be careful not to get caught up in self-pity or dwell on the things I can’t do. Chronic pain is a huge downer, but I do believe that fighting the pain is important. The day that I give in to it is the day I drop into my grave.

On Christmas, the only present that I want is to be free from fibromyalgia. Since that’s about as likely as world peace, I also asked for a new running vest so that I can run through (not away from!) the pain. Merry Christmas, and may you all find peace and painlessness.

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Fibro Athlete Christmas Wish List

As someone who’s both an athlete and a fibromyalgia sufferer, I have a dichotomous wish list for my material presents this year. At the top of my “stuff” list is Two Old Goats lotion, which is supposed to be great for pain relief. Next is running clothes, so I can pound the pavement while looking cute and updated. Third is Tiger Balm, because I love it for muscle spasm relief. Forth is running shoes, because mine are worn out. Sports and pain have always gone together, but with fibromyalgia, there’s almost never a break from the pain. These days, it’s nice to get a stocking full of goodies that cater to an athlete with fibromyalgia.

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Patellofemoral Syndrome

I had a doctor dry-needle my left knee pain yesterday, which is an experience I can only describe as having an MD treat my body like a voodoo doll. It was extremely painful, but I think it did some good. She said I have patellofemoral syndrome, which I’d guessed, but she also said the words no athlete wants to hear—“stop running for a week.”

It’s hard to know whether athletic injuries that I accumulate are truly as bad as they feel, or if fibromyalgia exaggerates the pain. That aspect of fibromyalgia—the intensified sensitivity to injury—is one of the ones that makes me crazy. I never want to back off a good workout if there’s not much of an injury, but on the other hand, I don’t want to keep going to agony if there really is something badly wrong. It’d be nice to have a more normal sensory pattern so that I could have a better gauge of how bad I’m hurt.

I won’t be able to run for a week because of the knee, but I fully intend to walk, lift weights, and do lots of stretching. I’m not sure if other fibromyalgia patients experience extreme inflexibility, but I do. My tight hamstrings make it difficult for me to even sit upright with my legs extended, and my neck is barely capable of side-bending. I’m planning to use this latest painful setback as time to develop a good, long-term plan for improved mobility. I just hope this knee pain lets up soon, because it’s making me a little nuts right now.

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Vegan, Day 3

Newby vegan pitfall—tortilla chips. Yes, they’re unhealthy and fattening, but they’re also vegan, and they taste great with guacamole, which is also vegan. I gained two pounds from water retention overnight!

I didn’t sleep much last night. I couldn’t get comfortable, despite an impressive selection of memory foam and cervical support pillows. My right arm, both knees, both hips, neck, and thoracic muscles were unhappy. I can tell there’s a facet joint locked in the upper thoracic area, and I’ve been resetting it by rolling on a ball (not fun, BTW), but I couldn’t get it to stay unlocked last night.

This morning, I mustered a decent 48-minute run through a couple of local parks. I had trouble looking for cars, because I couldn’t turn my head or upper back enough to see behind me. Most of the other aches improved during the run, but the back and neck did not. And, as I thought about my newly minted veganism, I majorly craved a baloney and mayonnaise sandwich.

For the record, I think baloney is gross. But there’s something about “can’t” that makes me want all kinds of non-vegan fare. I don’t feel any different yet (and I don’t expect to), although the random cravings are odd. When I got back from my run, I had a big bowl of Mesa Sunrise cereal with fresh strawberries, peaches, and unsweetened almond milk. So far, it’s easy to eat a vegan diet, but the cravings are definitely wild.

On a more serious note, I understand that fibromyalgia is closely tied to inflammation in the body. Refined sugar, dairy, and heavily processed foods have been reported to cause or increase inflammation. It seems like a no-brainer that going vegan could help or even cure fibromyalgia. Personal results remain to be seen, but I’m hopeful.

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Vegan, Day One

Desperation—muscle spasms, joint aches, a persistent rash on my left hip—has led me to my latest attempt to cure fibromyalgia. The last reasonable solution I haven’t attempted is veganism, and as of today, I’m giving it a chance.

I was a vegetarian for much of high school and college, although not a particularly healthy one. My meal choices centered around cheese pizza, tater tots, soda, and ice cream. Not eating meat isn’t a huge leap for me, but veganism is. I’ve been on a mostly organic-based diet for years, but that includes organic cheese, free-range meat, and even organic ice cream. I cut out refined sugar for five months and saw minimal results, but I’m hoping that going with a strict vegan diet will finally kick fibromyalgia out of my life.

This morning, I had our local co-op’s version of energy bars for breakfast. They’re fig-based squares with cocoa powder, goji berries, sunflower seeds, and sesame seeds. I’ve eaten them for years before a long run, so this day so far hasn’t been much of a foray into veganism. I have a feeling that it won’t be for three or four days that I really notice how closely I have to watch my food choices to stick to the vegan way of life.

Pain can make a person crazy. Fibromyalgia combines pain with a special kind of erratic yet constant crazy. If almond milk, fig paste, and Brussels sprouts can fix this hell, then I’ll raise a glass of kombucha to the vegan cure.

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Running from Pain

Ever tried on pants that were several sizes too small, stretching the seams to the max? This morning, the muscles across my upper back felt like overburdened seams, straining and ripping. I was angry, depressed, cynical, and miserable. I begged my girlfriend to tell me everything would be fine. She couldn’t. So I went for a run.

I made it 61 minutes and 42 seconds in the Florida summer heat. An absolute fury built inside me while I ran. My upper back and neck felt like a feather being pulled apart down the middle, and I could’ve sworn someone stabbed me in the collarbone and left the knife there. The worse the pain, the stronger the fury.

I lucked out today. It’s hard to say that athletes with fibromyalgia luck out with much, but the fury cooking inside me allowed me to wrench loose some of the locked facet joints and muscles spasms. I swung my left arm at an odd angle while I ran, and by the half-hour mark, the tearing sensation gave way to crepitus and popping. And then release, physical and emotional.

Not all days bring such luck. I’ve run many miles where I couldn’t even turn my head to look for cars because muscle spasms locked me in a straight-ahead stare. Sometimes my hips and knees feel like they’re on fire when my bodyweight lands for a footfall. But not today.

I hate fibromyalgia. It may kill me one day, but I’m going to fight every second not only for my life, but for my lifestyle as an athlete.