Lumbar MRI

The lumbar MRI experience wasn’t as bad as I thought it would be. I hate being in tight spaces and not being able to see a way out, but I drank a cup of Easy Now tea before the scan and it made me feel relatively calm. The MRI tech was considerate and positioned my legs comfortably since it hurts my back to lie flat. He recommended “spa music,” which turned out to be a decent blend of massage-like songs.

The best part was not having dye injected. When I had my cervical MRI, the technician injected dye into my arm, and like all injections, it was bee-sting-like and left a sore bruise. I assumed I’d need the dye for the lumbar MRI, but I didn’t, and that was a very nice surprise.

Another good surprise was the promise of results within 24 hours. I won’t see my doctor again for a few weeks, but I’ll be able to access the radiologist’s MRI report and look at my results at home. Since I work in healthcare, I’m reasonably competent at interpreting medical language, and by this time tomorrow, I’ll have an idea of whether or not my back is a disaster or not a big deal. I’ll update this post with the results as soon as I get them (or maybe a little later than that, since I’ll probably be at work). No matter what the report says, I’ll try to keep in mind that knowledge is power.

Piroxicam and Tizanidine

piroxicam

Piroxicam 20mg

After ditching Lyrica, I resolved to do whatever I could to stay off prescription drugs. Very rarely, I took one Skelaxin for muscle spasms. The side effects weren’t worth it most of the time, but sometimes I would be so bad off that I had to take one. As the one-year anniversary of my back and hip issues neared, I couldn’t take the daily pain and stiffness anymore. I made an appointment with the doctor who’s worked on my neck in the past. He’s smart, isn’t afraid of the latest medical technology, and perhaps most importantly, he actually spends time with his patients and listens like a human rather than a hurried robot. Unfortunately, those attributes make it very hard to get an appointment, and I waited two months despite being an established patient.

When I did finally see him, he examined my back and hip and told me a few things I already know, like I have tight muscles and joint laxity. He decided to order a lumbar MRI, which wasn’t a surprise. He also talked me into filling a couple of prescriptions because he was very worried about my high pain levels and lack of sleep. I left his office with two scripts I’d never heard of before—Piroxicam and Tizanidine.

I thought I might not fill the drugs, but pain wore me down and I headed to the pharmacy. I figured I could try them once or twice and get off them quickly if they sucked. Piroxicam is an NSAID pain reliever and Tizanidine is a short-acting muscle relaxer. I was given instructions to take the Piroxicam once per day and the Tizanidine up to three times per day. I took one of each the first night, and was asleep within an hour.

Going to sleep quickly is a big deal with a body wracked by chronic pain. Hell, going to sleep at all is monumental. When I woke up the next morning, I didn’t feel hung over at all—I just felt better. I felt genuinely rested, unlike the crappy, forced sleep that comes from some drugs.

Tizanidine 4mg

Tizanidine 4mg

For several days, I took one Piroxicam in the evening and one Tizanidine before bed, and I felt great. I hiked 21 miles one weekend, and began to feel hopeful about a mostly pain-free back, neck, and hip. As always, I follow a healthy diet and use my hot tub as much as three times per day. The good food, warm water, and new prescriptions gave me a feeling of freedom from pain, and it was priceless.

That feeling was also short-lived. After almost a week, I noticed my back pain was getting more intense again, and my neck felt badly out of alignment. This seems to be the curse with my fibromyalgia—something new helps for a little while, but before long, I’m back to hurting.

I took a break from my nightly muscle relaxer routine and didn’t notice much of a change. However, I’m now on day two of no Piroxicam, and I feel like crap. I haven’t decided yet if I’m going to start taking it again, but I’m leaning toward yes. I’m scheduled for the MRI this afternoon, and if I get stiff having to lie still for it, I’ll probably come home and pop a Piroxicam.

Have y’all tried either one of these medications? If so, what’s been your experience? I’d love to hear from you.

Ten Things I Did Before Fibromyalgia

10. I played soccer—a lot of soccer. It didn’t even seem like a big deal when I’d take off my cleats after a game and find a bloody sock. Pain was temporary before fibromyalgia.

9. I ran around mountains, up mountains, and once down a mountain.

8. I tried new sports, like rollerblading, just for fun. There was no fear of the repercussions of taking a stiff, broken body through a new routine.

7. I took ibuprofen for pain and it actually worked.

6. I sat in a chair and read books for hours without my back hurting.

5. I ate ice cream and brownies and cookies and knew nothing about total-body inflammation.

4. I planned my days around choices rather than obligations—choices like when to go to the gym rather than obligations like having to see the chiropractor just so I can stand to be alive.

3. I travelled, and didn’t have to plan trips around muscle spasms and pain. I carried fun stuff in my luggage rather than needing a carload of pain-relieving props (Back Buddy, camping mattress in case the hotel bed is too soft, cervical pillow, Tiger Balm, etc.).

2. I went to sleep like a normal person. No handfuls of herbal supplements, no piles of pillows to ease back pain, no special cervical pillow. I would just lie down and pull up the covers.

1. I was free without realizing it—free to live as boldly as I wished and without pain—free to explore, to take risks, and to relax.

Paying Medical Bills with Ads?

Taking a break from most fibromyalgia symptoms, contemplating this topic: ad campaigns that help my blog make a (tiny) bit of money. The quick overview: I need the money. I just got a $90 bill for an x-ray that the doctor didn’t even look at, and of course that’s in addition to copays and insurance premiums. However, when the ads are for things I object to, am I compromising my standards?

This is what I’ve come up with so far. The ads are always labeled as such, and I’ve posted before (and am doing so now) that I have little to no control over the ads. The only control I have is in allowing or not allowing them, which means I truly only control whether or not my blog brings in any money or goes broke. Readers have given me lots of feedback that they enjoy my blog, and many of us have been able to connect and offer advice and online friendship in the face of a really crappy chronic illness. The blog itself costs money to maintain, and I like to at least make my cost to run it.

On an ad-positive note, sometimes the services advertised really are beneficial to some people, and at the very least informative. I recently saw an ad for a new type of spinal surgery, and while I’m strictly forbidden to click, I Googled the service so I could read more about it. The advancements beyond spinal fusion sounded promising, and I wouldn’t have been as informed if I hadn’t seen an ad.

In a perfect world, this site would be ad-free, and the x-ray wouldn’t cost $90 and the doctor definitely wouldn’t bill for it if he didn’t even look at it. That said, I’m still uncomfortable with some of the ad content. It’s not explicit or political (I do have the power to block that stuff), but when it’s for products that I have no experience with, it can seem a little shady. I like to believe that everybody takes responsibility for themselves and doesn’t believe everything they read/click/etc. But I feel a responsibility to readers, and I want to know what y’all think. In the meantime, the ads will continue because the fibromyalgia-related medical bills continue. Thanks for your input!

Hamstrings and Back Pain

I’ve known for a long time that hamstring inflexibility can cause and exacerbate low back pain. Even when I was younger and my body worked well, my muscles were stiff. Now that I’m in my thirties, I’m stiffer than ever. I’ve been dealing with hip and back pain for a year, but until recently, my hamstrings didn’t seem to be the culprit.

hamstring stretch

This is my position for the hamstring stretch. Oddly, I thought my left leg was flat on the mat, but obviously it’s not. Leg-selfie, LOL!

As with all things health-related, our bodies are unique, and what benefits and harms them is often different than what produces similar results in our friends and family. Last week, after my usual chiropractic adjustment, I decided to try a new way of stretching to give my hamstrings one last chance to loosen up and relax their overly powerful grip on my back. My chiropractor agreed that the L5 “involvement” in my back is probably related to stiff legs.

I’ve tried every way imaginable to stretch my hamstrings in the past. I work in physical therapy and have even tried some unconventional methods. This time, I went with the tried-and-true, but with a few modifications.

Lying on my back on a yoga mat, I locked down my abdominal muscles to protect my back. I looped a Stretch Out Strap around my right foot and extended my leg into the air. I allowed my left leg to lie flat on the mat, which isn’t the easiest position to get into while ab bracing.

When I straightened my right leg in the air above my body, I felt an extremely uncomfortable (and familiar) pull at my ankle and knee. Muscles were definitely getting stretched. I used my right hand to hold the Stretch Out Strap and my left hand to force my right knee completely straight. My abs were braced the whole time, and for three minutes without a break I stayed in that position.

I can’t say it was pleasant. Far from it. I sweated. I cursed. I tried to think of distractions. If I’d allowed my resting leg to bend at the knee, as many people recommend, my pelvis would’ve been more comfortable. But I was going for gold. After a year of back pain, I knew taking the comfortable way was not the way for me.

I repeated the scenario on my left leg, with about a minute’s rest between stretches. For a few hours, my back felt worse, but later in the day, I noticed improvement. After five days of aggressively stretching my hamstrings, my back is so much better– no more crazed, pain-driven howling in the middle of the night.

I have no idea if hamstring stretching will work for everybody, but I’m certain that stiff muscles leave us all more susceptible to injury. Ask a physical therapist, check out reputable websites, and get to work on those hamstrings. Don’t give up if results aren’t immediate or the first few positions you try don’t help. You might find relief like I have through trial and error, and once you’re feeling better, the discomfort to get there will have been worth it.

As with all things health-related, ask your healthcare provider before trying anything new.

Food, Pain, and Guilt

“The psychology of guilt and illness—consuming sugar increases inflammation, but constant denial doesn’t feel good, either.” I wrote that note to myself during my lunch break at work last week. I’d been craving a Milky Way bar for three weeks without giving in to temptation. As the forth week loomed, I caved and bought the last Milky Way in the vending machine (which I took as a sign from the food gods, that it was there just for me).

I never eat sugar except the kind that naturally occurs in whole foods. I love sweet foods, but because of fibromyalgia, quite some time ago I committed to avoiding processed sugar. Why would I contribute to added pain and inflammation in my body? That’s a healthy, responsible mindset, but sometimes the guilt that comes with it is daunting.

It’s hard to watch my friends and family eat ice cream, cake, and brownies like it’s no big deal. I don’t begrudge them, but I’m jealous. My hardline thinking about food keeps me as healthy as possible in the face of chronic pain, but it can also imprison me with guilt. If I choose to live by normal social standards and have occasional birthday cake, I immediately feel at fault for the pain in my body.

My reasoning broke down on Thursday. Three weeks of wanting a Milky Way—and I have no idea why I specifically wanted that candy bar—and my back was killing me whether I ate one or not. I realized that my fit, healthy friends indulge quite often and don’t notice adverse side effects, and that it’s unreasonable for me to live in American society and completely forgo all culinary treats.

With way too much on my mind, I took the walk of shame to the vending machine. As I pushed my quarters into the coin slot, I remembered riding my bike to Tom Thumb as a kid and gorging on candy and soda. It was normal life then to eat candy, and I want a normal life again.

The Milky Way was better than I’d imagined. A coworker convinced me to avoid looking at the list of ingredients and just enjoy it. Every bite was delicious, and I wished it were king size.

Every time guilt crept up—I’m eating candy and my back hurts, therefore it’s my fault that my back hurts—I reminded myself that my back was hurting way before the Milky Way fantasy even crossed my mind. Enjoying occasional unhealthy snacks should not bring such guilt, and I know that. But it’s a daily struggle to not feel responsible for the pain, like if I had just eaten a head of broccoli instead of a candy bar, I’d feel better.

But in truth, I’ve lived in complete abstinence from sugar, and while it’s helped me overall, it wasn’t a cure. Just like sugar abstinence isn’t a cure, occasional sugar indulgence isn’t a cause of chronic pain. But I still feel guilty, and I won’t touch sugar again for a very long time.

Product Review: Topricin

TopricinI’m always in the market for any pain reliever that’s homeopathic. The local co-op recently had Topricin on sale, and I bought a 0.75oz tube to give it a try.

I’ve seen pretty bold claims on homeopathic products, and I’m often skeptical. (However, I love Crystal Star Natural Muscle Relaxers and good-quality magnesium supplements). When I first squirted the Topricin on my finger, I was even more unsure of its claim of pain relief. But my back was killing me, so I gave it a try.

For starters, it’s either odorless or has such a slight smell that I can’t detect it. I’m accustomed to all topical pain-relieving products having at least some kind of odor, including my beloved (and quite fragrant) Tiger Balm. But the Topricin literally smelled like nothing.

I rubbed it over my sore vertebrae (thanks, fibromyalgia) and waited for any sort of tingling or other sign that it was working. Nothing. But then I went to sleep, and that’s a rare thing when I’m in pain. I woke up at 3 a.m. to pee and realized my back was much better. Topricin or coincidence?

I tried it thrice more and now I love this odorless product. I’ve sometimes combined it with Tiger Balm for extra relief, although I have no idea if that’s smart or not. I’ve only used Topricin on my painful back and hip, but it says it’s patented for neuropathy and specifically mentions fibromyalgia, plus a host of other conditions.

Nothing is a cure for chronic pain, but Topricin helps, and sometimes that’s the best we can do. Plus, it’s not as full of extremely sketchy ingredients like some prescriptions, and it doesn’t cost much to try a small tube.

Good luck in your pain relief journey, and let me know about your favorite topical products.

As with all things health-related, ask your healthcare provider before trying anything new.

The “Unavailable” Specialist

I’ve been waiting on an appointment with a specialist for months, and the week was finally almost here. I hate going to doctors’ offices, and I hate planning my life around appointments. Mostly, I hate not being well. But the reality of not being well means spending a significant amount of time at the mercy of doctors and their scheduling staff. I called to confirm my appointment a week in advance because I’m driving five hours and spending the night in a hotel to see the specialist. The receptionist casually informed me that the doctor would be “unavailable” that day.

Unavailable? I asked her why I hadn’t been notified, and why I had to be the one to confirm the appointment, only to find out it was cancelled. She didn’t give me a decent answer, but said the doctor could see me the following week. I explained that I was coming from out of town, that the hotel was reserved, and I’d already made arrangements with my boss. I might as well have been talking to a toadstool.

I told the receptionist that I’d need to check my calendar and see if I could work something out to change all of my plans and come the following week. She said that was fine, and that the office would be open until 5 p.m. I called back within a few minutes to say yes to the later appointment, and was informed that it’d been given to someone else, and the next available appointment was in mid October. My thought: “Oc-fucking-tober???” My words: “but you guys were the ones who cancelled my appointment—without even telling me—and now I have to wait MONTHS to reschedule it?”

After an absolutely useless and maddening conversation with the receptionist, I asked for her manager. She said the manager was in a meeting, which felt dishonest at best. I asked her if the manager would call me back today, and she said yes. Of course, no one called me.

I understand that life happens. Things come up, and maybe the doctor had to schedule some sort of life-saving surgery for somebody. Or maybe he got a deal on an island vacation. I don’t really care. What I care about is the complete shit for customer service and the lack of decent resolution. At this point, I don’t even have another appointment scheduled because the manager must be on major overtime, as this would be the sixth hour of the meeting she was supposedly running.

It’s inexcusable when people are sick or hurt and doctors and staff act like it’s no big deal to mess around with the schedule and drag out the wait for months. We patients have so little power already. We’re in pain, we’re miserable, we’re frustrated. To have an appointment cancelled is bad enough, but to be made to wait so long after already waiting months is inexcusable. Unfortunately, there’s nothing we can do. If we need a specialist, as I do, there’s nowhere else to go. I have no words for the level of frustration and anger and disgust I feel, and perhaps the worst part is, no one in the doctor’s office seems to care a bit about how their decisions impact patients’ lives.

Supplements

Four Natural Muscle Relaxers and a cal-mag-zinc.

Four Natural Muscle Relaxers and a cal-mag-zinc.

What supplements, if any, do you use to improve your health or alleviate symptoms? I’ve experimented with lots of them, and switched brands fairly often. Currently, I take a lot of magnesium to help with muscle spasms caused by dystonia. I also take fish oil, melatonin, and cal-mag-zinc at night. I don’t take a multivitamin because my diet is so clean that I don’t feel like I need one.

For fibromyalgia and/or dystonia flare-ups, I keep Crystal Star Natural Muscle Relaxers on hand. They don’t work wonders, but they also don’t make me turn into a useless zombie like prescription pills do. I tried Curcumin but got no relief, so now I just include a decent amount of turmeric in my diet (just in case it works over time), which is essentially what’s in Curcumin.

I can’t underscore how much I hate prescription drugs. Even though it’s often impossible to live without them, I’ve been so beaten down by side effects in the past that it now takes a very, very bad day to make me turn to prescriptions.

Lightning and a Return to Running

The wet evidence of my storm-plagued return to running. Honestly, it was kind of fun.

The wet evidence of my storm-plagued return to running. Honestly, it was kind of fun.

Remember the song Maybe God is Tryin’ to Tell You Somethin’ from The Color Purple? I made my return to running today after an almost two-month break because of my hip. I’d been jogging along for about forty-five seconds when the sky broke open. I’d been looking forward to trying to run for so long and have had so many setbacks over the years, and I’m not very good at giving up. So I kept going, even when the flashes of lightning and blasts of thunder got closer together, which I’ve read means they’re getting closer to me.

At minute 13, lightning came down with a massive, simultaneous thunder clap. It was more like an explosion than thunder and lightning. I jumped into the middle of the road (not the best solution) and hollered. The hairs on my arms and neck felt like cactus spines, and my teeth felt like they were buzzing. “God is tryin’ to tell you somethin’” got stuck on repeat in my head. I changed course for home.

I made it 17 minutes before deciding not to overdo it with my comeback. My rain-soaked clothes are airing out on the porch, and my hip is throbbing, but it was throbbing before I left for my run. Considering I got caught in one of our famous Florida summer thunderstorms, ran longer than I expected, and didn’t end up a scorched piece of meat, I’m pretty happy. If no one can help me with my pain and spasms, I might as well live and die how I choose. These days, I feel like I can survive anything (until I can’t).