A few people have asked if my book is a fibromyalgia book, and my answer is both yes and no. First and foremost, the book is my story– the details of my injuries, the backstory surrounding getting hurt, and the ways I’ve tried to deal with medical setbacks and chronic pain while remaining true to myself as an active, athletic human. A fibromyalgia diagnosis is definitely part of the story, and the book probably wouldn’t have happened without this blog. But, like every fibromyalgia sufferer I’ve ever met, my life– medically and in general– is more than a diagnosis, so my book is more than a fibromyalgia book. We are all so much more than the words that may define us to others.
I got word this morning that my book won a Florida Authors and Publishers President’s Book Award! There are so many letdowns, rejections, and silences in the publishing industry, and getting a little validation is a really nice feeling. I appreciate everyone’s support along the way.
I had a rough few days and haven’t slept much, so some good news was extra appreciated this morning. Something’s been going on with my low back, and the radiculopathy got way out of control a few nights ago. I’m not sure what’s angered my back this time, but something definitely got it fired up.
The pain and tingling in my legs got so bad that I couldn’t get comfortable in any position. Eventually, out of middle-of-the-night desperation, I took a chance and rotated my torso until I felt and heard a tremendous pop in the upper lumbar area. Even though it was a little scary to twist and crack my spine, the relief was almost instant. I’m still not where I was a week ago, but I was able to run 4 miles this morning and even put in some decent pace on the final mile. I’m sure the morning news that my book is an award-winner helped me speed up a bit on that last mile. Good news helps everything.
It’s been hot as hell in my part of the world this summer, but I’ve been able to gradually increase my running mileage despite the heat. My longest run this year is 8 miles, which makes me pretty happy considering I wasn’t able to start running again until March of this year after nearly a year off after a disastrous April of last year. I came home from a two weeks of travel and my legs were much tighter than usual and my back was stiff (although it’s always stiff, so that wasn’t new). I thought a run would help loosen me up, but it didn’t at all, and then an awkward bend to pick up my little beagle sent me into severe spasms. Fast forward to now, and with major core and posture work, medical marijuana (a whole other story that I need to write about), and personalized supplements, and 8 miles seems pretty awesome.
My speed isn’t where I want it to be, but I’m trying to stay calm and steady and trust that progress will happen. I’ve already sped up quite a bit in the last month, but I’m also being mindful to avoid common overuse injuries, like stress fractures, so I’m not letting myself do quite as much as I’d like to. I went from running 11-minutes-plus per mile upon my return a few months ago to running sub-10 this month. Both of those are very slow compared to my former self, but I’m still happy with the progress. I’ve done some very short stints in the 7-minutes-per-mile range, which felt great and a little scary. I’m always mindful of my back, which probably makes me tense up, so I’m trying to work on staying calm while speeding up my leg turnover.
My favorite run of 2018 so far was an 8-miler through the state forest. It was extremely hot and I went through all my water on my FuelBelt by the 2/3 mark, but the peace and scenery were totally worth it. Afterwards, I swam in a cold, clear lake while tiny fish bumped into my legs and I took in the enormity of what my body had accomplished. It was a great day, and I’m so glad to be able to run again.
I had a really bad day that mostly sucked because something I’d felt a lot of hope about turned out to be nothing. I’m always cautious with my hope, especially about things that seems like long shots anyway, but I guess I was more hopeful than I thought this time, and the letdown was shockingly crushing. It’s just a work thing, not life or death, but sometimes wanting something really bad and working hard for it and then not getting it is devastating. My rational mind says it’s part of a learning process, but that’s easier to say than it is to feel when the letdown is fresh and the pain is raw.
I’m usually not one to eat my feelings, but last night, after a healthy dinner at the local co-op, I eyed a big bag of ranch-flavored tortilla chips. In mild defense of my transgression, the chips were organic (LOL, I know, still fried junk). I decided that if I took a long walk and still wanted them, I’d allow myself to stray from my normally strict diet and indulge a little. The walk didn’t help lift my sadness, and I walked back to the co-op with fifteen minutes to spare before closing and plunked down $2 for the bag of chips. Then, of course, I ate them all. Every single one of them, even though the serving size was for a family.
It was a rare slip for me, and I felt the familiar guilt of eating crap while dealing with chronic health problems, but damn, those chips were good. I tried pouring some in a bowl and eating just that amount, but it wasn’t long before I dumped the whole bag out and feasted. The free-for-all didn’t make the disappointment of the day go away, but I truly enjoyed eating some junk for a change, and that brief feeling of pleasure was a nice distraction.
I worried that I wouldn’t sleep much and would get achy from the processed food, but I ended up sleeping longer (and uninterrupted!) than I have in months. I didn’t even wake up to pee in the middle of the night, which was probably due to the massive salt load I put in my body with my chow fest. And when I woke up this morning, I felt better and less achy than usual.
I’m not advocating a junk food diet, but I think there’s a lesson here for me, and that is to relax and enjoy a treat every now and then. That’s something that can be hard for someone who feels guilt over poor dietary choices, but maybe my thinking should shift to allow more occasional treats. When I woke up this morning, I felt great, ran 4 miles in a thunderstorm, and am way less stiff and sore than usual. Cheers to chips, at least every once in a while.
I recently had the honor of being interviewed for Kaigo Health’s new podcast, Restoration Row. Their CEO, Uzochukwu Chima, and I talked awhile, and then an actress named Megan Dunlop performed a reading from my book. How cool! The book journey has been quite a ride so far.
Restoration Row has some really interesting and inspiring stories, and I highly recommend checking it out on iTunes or Stitcher. Click here for my episode, but definitely check out all the others while you’re there. The talented production crew will upload a new episode often, so check back soon for more.
I got word from my publisher that the Kindle version of my book will be temporarily discounted. Now’s your chance to snag the e-book for less than the price of artisanal coffee!Click here to check it out.
My book, Hurting Like Hell, Living with Gusto: My Battle with Chronic Pain, is helping me spread the word about those of us living with less-than-ideal health. I have no idea where the journey will end, but I’m happy with all the chances I’m getting to advocate for chronic pain patients.
As for my health, I’m having ups and downs as usual, but I keep seeking new information and trying new solutions. I met two awesome chiropractors while I was in metro Atlanta for book tour events, and they gave me invaluable feedback after taking specialized x-rays to analyze my posture. Since meeting with them, I’ve been able to return to running, albeit carefully and not easily. I work hard every day to correct my excessive lumbar lordosis along with the other postural misalignments they showed me on x-ray. Good health is definitely a work in progress, but the work pays off slowly and surely.
At long last, my book is published! It’s been under contract for a little over a year and went to press a few weeks ago. Orders have started shipping from Amazon and Barnes & Noble, reviews are beginning to come in, and author events are lining up. Click here to check it out on Amazon.
This has been a whirlwind and still feels insanely surreal, although every time I do an event or hand-sell a book to a friend or stranger, reality seems a little closer. I’ve learned a lot of lessons every day of the journey, and continue to learn almost constantly. Here’s what one of the reviewers, Amos Lassen, wrote: “This is so much more than just a beautiful read. It is a memoir to be cherished and referred to when we are feeling down.”
I’ve been very busy with the release of my book (yay!) plus continuing to work some healthcare shifts, and the best way to catch up here is a series of random updates. Here they are:
The regenerative medicine doctor is awesome. After several comprehensive blood tests, he settled on a supplement regimen to help me restore some of my health. Based on the results of my blood work (and OMG it was a TON of blood work– never want to do that again), I’m taking more than a dozen supplements twice a day to address things like low testosterone, gut yeast, and inflammation. All of the supplements are purified and/or hypoallergenic. Some of the supplements I take are fish oil, magnesium, turmeric, DHEA, and an interesting little combo called “cognitive aminos.” I feel much better in general, have less anxiety, and have pretty much gotten used to swallowing a zillion capsules a day. All of this, of course, comes at a steep financial price and is NOT covered by my extremely expensive health insurance policy.
I’m midway through Class IV laser treatments on my back. It, too is expensive and not covered by insurance, but it’s really helping. Almost all of the referred pain is gone from my butt, and there’s much less referred pain in my groin and abdomen. I’m still having a hell of a time when I lie down, and I’m losing my mind not being able to work out as much as I want, but the lack of butt pain is miraculous.
Despite trying not to, I still have to take occasional prescription meds. Two nights ago, I took one muscle relaxer because it was 3 a.m. and I was in misery. I don’t even think it did anything clinically except knock me out, but it was nice to have lights out, if only for a few hours.
I started the first round of paperwork to get medical marijuana for muscle spasms. It is an absolutely ridiculous process and it, too, will not be covered by insurance– assuming I’m approved, which is a big assumption. Soap box– I could go get a prescription for something a lot stronger, a lot more addictive, and a lot heavier on the side effects tomorrow and fill it the same day. There’s something very, very wrong with that.
I’ve had as good an October so far as I had a bad September, health-wise. It’s been a almost six weeks since I’ve needed a chiropractic adjustment (although I have to twist, roll, and traction myself daily), and I’m back up to running multiple times per week and lifting weights. Until a few days ago, I was sleeping pretty well, too. Chronic health problems are often cyclical, and I was reminded of that a few days ago when my hips and low back felt locked and painful and self-care wasn’t cutting it. I didn’t do anything out of the ordinary to cause the issue, and I’m hoping a quick trip to my beloved chiropractor will fix my woes.
I bit off more than I can chew with work, and some of that stress is probably contributing to my tight muscles and sore back. The teaching semester will be over in about five weeks— not that I’m counting— and getting down to one job plus writing will be relieving. I don’t know if it’s age, health issues, or what, but I just can’t work as many jobs as I used to without feeling overwhelmed.
I had a business meeting at an office about twenty miles from the state forest, and I knew a good run in the clean air would help clear my mind. I saw an awesome rattlesnake and enjoyed the solitude. I had to stop a few times to try to work the kinks out of my back, but otherwise it was a great run. I hope I can get out there again soon. And speaking of awesome runs– I had a great one at Cheaha State Park in Alabama. The mountain views, the morning mist…it was one of those days when it’s great to be alive and aware.
I planned to run eight miles on forest roads yesterday morning and meet friends for a day on the river afterward. Despite careful planning, I realized my chosen route wouldn’t work when I found out from the kayak shuttle driver that my friends’ drop-off point was going to be more southerly than I thought. If I ran the route I chose, I’d come to the river north of them, and I was pretty sure I couldn’t catch their kayaks with my 99-cent tube. The shuttle driver saved the day by giving me fantastic directions for a pig-trail route to catch up with them further south. The new plan made me a little uneasy but sparked my curiosity. As my friends boarded the shuttle, I repacked my bag, ditching my iPod in favor of a compass and adding extra Gin Gins in case I got lost and hungry.
The shuttle driver’s directions were spot-on, even though he failed to mention a few turnoffs that made me more than a little nervous. Every time I passed another trail, I wondered if he’d forgotten to mention a turn. I decided to run out for an hour, and if I didn’t find the river by then, I’d turn around and follow my footsteps (and compass) back to my truck. I love adventures, but I hate going off road without a map. None of the forest maps I own—not even the official Forest Service map—shows the route I was on yesterday.
At the eighteen-minute mark, I found the T the driver told me about. “You’ll come to a place where you’ll either have to go left or right,” he said. “Turn left.” I’d written his words down on a tiny piece of paper and stuffed it in my waistpack so I wouldn’t risk my memory playing tricks. I turned left like he said, and within ten minutes I was at the river.
Unfortunately, my friends were way upstream, so I had time to kill. I turned around and ran a bit more, than came back to the river and talked with a family who’d arrived via shuttle for tubing. What I witnessed—and the conversations I had with that family—is too powerful and emotional for me to talk about yet, but suffice it to say I felt the convergence of tragedy, unfairness, hope, and resilience. Rather than wait for my friends, I decided to hike further upriver and process my encounter with the family of strangers.
I found another unmarked trail, this one narrow and crisscrossed by spider webs, but it was a decent hike. I followed the route upstream for a mile until I hit an impasse. A huge patch of wetlands suddenly appeared, and I don’t think I could’ve even made it through with snake waders and boots, let alone in running shorts and sneakers. I dipped down off the trail onto a sandy beach and sat under a cypress tree in the river. My back and neck were really bothering me and I hadn’t slept more than three hours the night before, but the cold water felt great. I wished I could figure out a way to float on my back and completely relax without being carried by the current.
My friends arrived eventually, better late than never, and their kayaks were loaded with food and supplies. It was great to see them paddling their kayaks toward me, and I sat with them on the beach and pigged out for a while before we headed downstream. I’d run with a deflated tube bungeed to my waistpack, and once I got it blown up, we took off down the river. Note for future adventures: tubing on a 99-cent piece of crap is a lot slower than going down the river on a kayak. I ended up getting towed a good portion of the way by three generous friends who switched off paddling duties as I clung to the tails of their kayaks. I told them I’d be fine and would catch up eventually, but they stayed with me anyway. Five slow miles later, we floated under the last bridge before the river becomes non-navigable, and I walked up the bank to my truck. Changing into dry, cotton clothes felt great after being wet literally all day.
It was a very successful trip in terms of nothing going wrong, but I was so ready for something crazy to happen that when it didn’t I was almost a little let down. I’m excited about the future, though—after seeing all those pig trails, I’m ready to go back and explore more uncharted territory. I’m going to take my GPS and make my own map of the trails. Who knows? Maybe I can sell copies of the map (to that one other person besides me in the whole world who would want to hike there?). Better keep my day jobs.